Today was a big day for the little guy. We met with his new plastic surgeon and got some good news! We’ll call his office on Friday to schedule the first surgery on his lip. The doc said he’ll do it in a couple phases with the first being the repair of the lip. Then, later, when Jake’s 8-10 months old he’ll do repairs on the palate. Very exciting! Sounds like we can get the lip scheduled fairly quickly! Oh, the ENT (ear, nose & throat) will go in to check his airway when the lip surgery is being done too. That will get us on the road to getting the trach out. It won’t come out real soon but it’s absolutely not a permanent thing.
That’s the big news for now. We meet with his new orthopedic surgeon in a couple weeks. Things are going really well. We have overnight nursing in place which really helps.
He really surprised us both today while we were waiting to see the doctor. Andrea was holding him and I asked her, “Did you just move his arm?”. She said, “No.”. He moved his right arm again, a good two inches...just to show off. Seems like the occupational and physical therapy is already helping! He’s got a LONG way to go but he’s getting more flexible by the day.
As always....stay tuned for future updates.........as time allows!
June 26, 2007
A big day
14 Comments 
Hey guys,
Great news. That little nephew of mine is a champ. I love you baby Jake. Nate and Alex love you too, and Uncle Jimmy. Hope to see you soon.
Love,
Aunt Chrissy
Great news. That little nephew of mine is a champ. I love you baby Jake. Nate and Alex love you too, and Uncle Jimmy. Hope to see you soon.
Love,
Aunt Chrissy
Tuesday, June 26, 2007 - 10:19 PM
That is such good news, but what else could he do with devoted parents like you two. We'll keep praying for you all (steady progress for Jake and sleep for the parents)
Love ya,
Aunt Terry
Love ya,
Aunt Terry
Tuesday, June 26, 2007 - 10:23 PM
Well, having his lip done won't make him any cuter if that's what you have in mind! All good news and one more step in the right direction. Great news on his arm. I have been thinking about nerve endings and how stimulation makes them grow and become active. Keep up the OT! On the other hand It also may be the thousands of stimulating toys you two bought for him!
As always keep me posted.
Love,
Aunt Lorry
As always keep me posted.
Love,
Aunt Lorry
Wednesday, June 27, 2007 - 05:52 AM
good news, glad to hear he's doing well. Fuzzy Monkey
Wednesday, June 27, 2007 - 07:44 AM
That is great news. But what do you expect with two parents like you two. The Good Lord knew what he was doing when he sent such a special little guy to you two.....Can't wait to finally see this little baby angel. He really is a little fighter. God Bless all of you.
Love
Auntie Jo-Ann
Love
Auntie Jo-Ann
Wednesday, June 27, 2007 - 07:58 AM
Really good news! You three are constantly in our thoughts and prayers. We love you! Keep on workin' those limbs Jakey!
Love,
Aunt Dot and Aunt Michelle
Love,
Aunt Dot and Aunt Michelle
Wednesday, June 27, 2007 - 08:11 AM
I am so glad to hear he is doing so well!!
I look forward to more updates and pictures.
I finally found the first few original postings in my "spam" folder. Sorry I am behind on the news!! I wish your family well!
Lisa Gates
I look forward to more updates and pictures.
I finally found the first few original postings in my "spam" folder. Sorry I am behind on the news!! I wish your family well!
Lisa Gates
Wednesday, June 27, 2007 - 09:57 AM
Hi Mommies!
We love the updates, thank you so much for finding the time to post news. It's wonderful to hear how King Jake is doing and we are sending lot's of hugs and kisses your way! Hope to see you all soon : )
Love,
Leslie & Mary
We love the updates, thank you so much for finding the time to post news. It's wonderful to hear how King Jake is doing and we are sending lot's of hugs and kisses your way! Hope to see you all soon : )
Love,
Leslie & Mary
Wednesday, June 27, 2007 - 11:15 AM
Andrea & Betsy,
We were really happy to see Jake on Sunday and Amazed at how much he has grown. He has to be over 10lbs. The therapy you showed us is terrific and obviously is improving his flexibility. He is on my mind every day and I have a image of those dark eyes staring up at me. He is precious and very special to us.
Love,
Grandpa Gates
We were really happy to see Jake on Sunday and Amazed at how much he has grown. He has to be over 10lbs. The therapy you showed us is terrific and obviously is improving his flexibility. He is on my mind every day and I have a image of those dark eyes staring up at me. He is precious and very special to us.
Love,
Grandpa Gates
Wednesday, June 27, 2007 - 11:50 AM
YEAH JAKE!!! YOU GO BOY!!! Wish we where closer so we could see you all. Keeping all 3 of you in our thoughts and prayers.
Love from Harrisburg, PA.
The Meadath Family
Love from Harrisburg, PA.
The Meadath Family
Wednesday, June 27, 2007 - 07:58 PM
I am so glad God put him in your care. He could not have picked two finer people to love him. I will keep you in my prayers as usual for strength and nurture and daily joys like when Jake moved his arm. I am glad to hear that you have the night nurse. If you need any backup or babysitting I am off all summer and would be glad to help out. Love,Great Aunt Chris
Wednesday, June 27, 2007 - 09:28 PM
I am really glad to hear he is progressing well. Thanks for taking the time to let us know how things are going. Hugs, kisses, well wishes, and prayers to the family!!
Michael
Michael
Saturday, June 30, 2007 - 12:24 PM
We are so thrilled to hear of Jake's progress. You continue to be in our prayers and we look forward to meeting Jake and seeing all of you. Keep up the the good progress and thank you for keeping us all up to speed on Jake's progress.
Saturday, June 30, 2007 - 07:58 PM
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