Jake has had a long couple weeks. He’s now officially been in the hospital over 3 weeks. He’s doing pretty well...physical and occupational therapy are both really pleased with his progress so far. Of course, we’re starting small with therapy but he’s coming along. Drea and I do stretches with him daily and he gets some custom made splints on his wrists 4 times a day. His flexibility gets better every day. Our biggest obstacle now is getting him to swallow. They did a swallow study and he didn’t really do much. At first the docs told us to discontinue oral feeding altogether for the time being. Today, after getting the results of his MRI from yesterday, the speech therapist said we could start trying with the bottle again REALLY slowly. We don’t want him to aspirate (choke) on his feedings. That being said, we have some decisions to make that will help get him home to us soon!
In the picture above and a couple on his pictures page, you’ll notice tape going across his upper lip. That’s actually helping pull the cleft together and helping his nose get reshaped. He’ll probably get the surgery on his nose/cleft in August or September. For now, that’s the only timeframe we know of as far as any surgery goes.
I know I’ve been really slow in updating everyone but please be patient with me!!! Most of our days are spent with Jake at the hospital. He’s looking adorable and has a lot of personality. More updates soon.....
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