This has truly been a busy, yet super productive week for the little guy! On Tuesday he went in for a 4 1/2 hour MRI. Because he’s an infant, they had to sedate him to ensure that he didn’t move during the MRI. He did great! When they wheeled him out after the procedure, he was already awake and wide-eyed. The results came back good too. His central nervous system looks to be in order which is a HUGE relief!
Yesterday he went into general surgery to have several things done. They inserted a g-tube (for feeding), he had a muscle biopsy - to determine if his issues are neurological or muscular, and they did his circumcision. Again, he was sedated and came through like a champ! The muscle biopsy got sent out and we’ll get the results in 2-6 weeks. The g-tube was put in so that he can get fed until he figures out how to swallow. During the swallow study they did last week, he failed to swallow at all. That doesn’t mean he’ll never swallow, it just means that we need to continually work on oral stimulation via a pacifier, our fingers in his mouth - he doesn’t care for gloved fingers too much though - and massage on his jawline. Hopefully this will help him connect sucking with swallowing.
The best news of the week though is that he’ll be coming home early next week!!! YIPPEEEEE!!!! We are thrilled!
And, of course, I added a couple new pictures to the Photos of Jacob page!
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