Even though it hasn’t felt like summer, we’ve been pretty busy. Jake’s been doing really well without the trach. He’s talking up a storm and laughing and singing all the time!
In July we took our first official vacation. En route to our first AMC convention, we spent a few days in Gettysburg. Andrea was in history geek heaven!!! The convention was in Philly and it was awesome. We got to meet so many new, wonderful AMC people and families. Jake had a a great time and we were able to talk with other folks dealing with some of the issues we deal with. The very first night of the convention, Jake got to go in the pool for the first time. They had a mini-aqua therapy session. Despite the fact that he couldn’t go any deeper than his tummy, he LOVED it!!! Next year, the convention is in Orlando...thinking a nice LONG vacation that will include some time in Disney!!!
On the trach note, Jake will be having another surgery next Monday to close the trach stoma (hole) that just isn’t closing the way it should be. This’ll be the first time with anesthesia without the trach. Hopefully, this too will be uneventful. This one will again require an overnight stay which he’s not terribly fond of but it’ll be good in the long run. The sooner he’s healed up, the sooner he is hitting the pool!!!
Today we got the “big” wheels for Jake’s stander so he’ll be hot-rodding even more now. The wheels seem really easy to move so this should help give him some independent mobility. He’s also going to be participating in a power wheelchair study at Shriner’s. It sounds pretty cool and we’re all about research!
As always, thanks for all the love, prayers, good thoughts, vibes, energy!
We’re in the process of switching our main computer from PC to Mac so no pics today!
5 Comments 
It's so wonderful to hear all the good things going on for Jake. He is truly blessed with wonderful and dedicated parents!
Sara
Sara
Monday, August 10, 2009 - 10:20 PM
Wow, continue to enjoy hearing about/seeing Jake's progress.
You are AWESOME parents and Jake looks amazing!!!
Nurse Lynda
You are AWESOME parents and Jake looks amazing!!!
Nurse Lynda
Tuesday, August 11, 2009 - 09:08 AM
We are so thrilled to hear about the great progress Jake is making. We can't wait for him to fully experience the pool. Thanks for the update.
Love, Bruce and Edna
Love, Bruce and Edna
Tuesday, August 11, 2009 - 04:55 PM
So happy that Jake's doing well! The AMC convention sounds neat- what a great support. The parents are always the experts!
You'll love the Mac.
Deb C
You'll love the Mac.
Deb C
Tuesday, August 11, 2009 - 07:34 PM
Hi Guys!
Wow! Jake is doing good. Now with the big wheels on the stander. Watch out Mom's! I can't wait to hear him sing and make sounds. I love all three of you.
Love
Auntie Jo-Ann
Wow! Jake is doing good. Now with the big wheels on the stander. Watch out Mom's! I can't wait to hear him sing and make sounds. I love all three of you.
Love
Auntie Jo-Ann
Monday, August 17, 2009 - 11:00 AM
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