Jake had another swallow study done on Thursday. He “failed” the last one he had shortly after he was born so we kept our fingers crossed. Much to our delight, Jake does in fact swallow!!! AMAZING news! While he has to work a lot to actually swallow, after 4-5 tries, the food does go down. Now we can start trying to build up his esophageal muscles that will eventually let him eat for nutrition. Thanks to everyone for all the good thoughts and prayers!
We’re going to Shriner’s next month. We’ll be seeing the cleft lip/palate group on Sept. 11th and we’ll see the orthopedic hand group on Oct. 1st. Hopefully we can get back on track and make more progress towards getting the trach out.
Jake’s legs/feet are doing well. He really kind of enjoys being in his stander, he falls asleep in it so he must be fairly comfortable!
New pics posted as always!
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