Successful Trip - March 1, 2008

Hopefully, we’ve FINALLY found the two specialists we’ve been looking for.  We met Jake’s new plastic surgeon on Wednesday.  All of nurses describe him as a grumpy old man in the same breath as saying he’s the best doc they’ve ever worked with.  He tells it how it is without a lot of sugar coating.  He confirmed that Jake doesn’t have a lot of movement in his jaw.  This makes many things difficult including the palate repair.  He checked Jake’s palate and wasn’t completely sure of what’s going on in there.  He said it’s definitely not a normal cleft but he couldn’t see or feel exactly what it is.  That being said, we did get head x-rays before we left OH. 

On Thursday, we met the new ENT/Head & Neck surgeon.  Another straight shooter.  From what they found on the scope, it’s not going to be a quick fix to get the trach out.  They are cautiously optimistic about getting it out.  It will definitely take more than just the jaw distraction.  Probably a couple more operations.  They saw a few things during the scope that may need surgery but, as things progress, they could work themselves out.  The classic hurry-up and wait game!  At any rate, we did get the go-ahead to start trying solid foods with him again.  We’ve been waiting a while for that!

So, as always, stay tuned!!!  

8 Comments

Anonymous

That is good news, I'm so happy they gave hope and encouragement.
Love ya,
Scary Aunt Terri

Saturday, March 1, 2008 - 07:40 PM

Sara

Yeah,  Go Team Jake!

Sara

Saturday, March 1, 2008 - 09:34 PM

Grandma &Grandpa

Grandma and Grandpa are happy too!  Jake is blessed with parents who will always make sure he gets the best.  We are excited to see him in April and look forward to celebrating his 1st Birthday.

Grandma & Grandpa Gates

Sunday, March 2, 2008 - 05:11 PM

Aunt Lorry

Thanks for the update. Good news really don't you think? Make sure you takes lots of pictures of the boy eating please!!!

Monday, March 3, 2008 - 06:57 AM

Auntie Jo-Ann

Hi Guys
Wow that sounds like good news.  I am so glad you made the trip.  Boy it sounds great that he could start to get baby food.  Boy that is really going to be a mess.  Hope he doesn' spite out at you!!!!!  Of course keep me posted.
love
Auntie Jo-Ann

Monday, March 3, 2008 - 10:53 AM

Anonymous

Thanks for the update.  "The classic hurry up and wait" comment is so true!  The main thing is that you know you're doing everything possible to get the best care and treatment for Jake.  You're doing a terrific job.  Give Jake a hug for me and I hope to visit when Grama Gates gets back in town.    Call anytime if you need an extra hand. Deb

Monday, March 3, 2008 - 04:51 PM

Anonymous

Hey Roon and Drea!

I know you guys are hanging in there! Keep on praying. Youl'd be amazed at the power of prayer, and have failth!

Love,

Mina

Tuesday, March 4, 2008 - 07:27 PM

Judy

So glad the trip to Ohio was encouraging.  Jake meets each challenge with an
amazing spirit and with his mommies in his corner, always seeking what's best for him and ALL who love him praying for him, I'm sure that will continue as he goes forward. 

Solid foods should be fun, as if he's not growing fast enough as it is!!!.  I can just imagine those big eyes as he tries new foods.  You guys better get ready to duck if he finds one he doesn't like.

Kiss those cute cheeks for me (his, not yours) and hugs to the mommies.
You are the best!

Love ya,
Judy

Wednesday, March 5, 2008 - 08:59 AM