Today, we scheduled Jake’s jaw distraction surgery for December 12th. Yea!!!!!! With this surgery, we’ll be on the road to getting the trach out next summer. The entire process will take about 3 months but from what we’ve been told, it’s not a bad surgery.
Jake did get fitted for his speaking valve (Passy-Muir valve) and has been doing really well with it. The first time we heard him cried, we both got a little misty. After all, that was the first time we’d really heard him cry since the day he was born. I have a feeling that once he figures out much he can bug his mom’s by talking, we’re done for!
December 12th is going to be a really big day for us. We really appreciate all the good thoughts, love, and prayers from everyone!
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Jake, al you have to say is Ma, Ma,Ma,Ma,Ma,Ma,Ma and you get everything.... well, almost everything... but they do stop and look at least!!
Wednesday, December 3, 2008 - 12:38 AM
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