Into the Holidays - December 7, 2009

Well, Thanksgiving has come and gone, the Christmas decorations are up, and Jake has successfully completed another surgery!  On November 5th, Jake had a talectomy.  That’s a surgery where they remove all or part of the talus bone from the foot.  Since have the clubfoot repair over a year ago, Jake’s feet have not strayed from the “ballerina toes” position.  We haven’t been able to get a 90 degree angle between his legs and feet yet, hence the surgery.  So, they did the surgery, positioned his feet in the 90 degree angles, put pins in and casted him for 3 weeks.  The day before Thanksgiving, he went back under, had the casts taken off, pins removed and then got re-casted.  These will stay on for 3 more weeks and will be taken off just in time for Christmas!  Once his feet are free, we’ll hit the stander hard in our continued quest to get Jake standing and ultimately walking.

Last week, Jake underwent another swallow study since he’s now trach-less.  The results were better than last time but still indicated that he has a LONG way to go.  His swallows are now a single event instead of a series of smaller ones, that’s a good thing.  But...he’s not a huge fan of swallowing!  He makes it look like he’s taking stuff into his mouth but in reality, it’s grazing his lips and never getting into his mouth.  We have found, this week, that when he gets to hold the spoon and, in a manner of speaking, feed himself, he actually takes more into his mouth.  A step closer!!!

Other than that, life has been pretty normal!  Looking forward to the holidays and spending time with family and friends.  We hope that everyone has a safe and wonderful Christmas, Hanukkah, of holiday season!  Thanks for all the continued love, prayers, and support!  (new pics are now up!)

3 Comments

Auntie Jo-Ann

Hi Guys
Boy that little guy has really come through out these surgeries etc.  He really is a tough little guy.  Hope this surgery will work on this feet.  Watch out girls he will be running soon!!!!!!Ha!Ha!
Hope you guys have a wonderful Christmas and a very Happy New Year.  Wish I could be there......
Love
Auntie
Jo-Ann

Monday, December 7, 2009 - 03:14 PM

Anonymous

Boy oh boy!  I can't wait to see him run after Boomer & Bailey around the kitchen island over here.  He sure made quick order of it when you were over last!  Always glad to hear of his progress...he is amazing!!! Love to listen to his laugh.
love
Pam & Bill

Monday, December 7, 2009 - 06:47 PM

Aunt Christine

Awesome!  I just can't wait  for him to make his first steps.  I just know he can.

Monday, December 7, 2009 - 08:52 PM