I still can’t believe it’s true, as of June 25, 2009 Jake no longer has the trach!!! When we went to see his ENT on Monday she said, let’s not wait to take the trach out, let’s do it this week. We had been tentatively scheduled for next week on the 30th. So, Wednesday afternoon, we got the call that they definitely had a bed for him and headed down to Children’s. After getting admitted and everything, the residents came in. They downsized the trach (which is exactly what it sounds like) and capped it. He was hooked up to a pulse oximeter to make sure that his blood/oxygen saturation levels remained where they should. Jake has never slept with the trach capped but I truly don’t think he noticed any difference. Things went well overnight so his ENT took the trach out in the morning. Seriously, it was like nothing had happened for him. We were, of course, out of our minds ecstatic, but Jake was just, well....Jake! We had to stay another 24 hours to make sure his sat levels held both during the day and overnight. Needless to say, they did!
We ended this fantastic 3 day event by going to Ravinia to see the Indigio Girls with a great group of people. It was Jake’s first concert!
Now, we can’t wait for the stoma to completely heal so we can through his little butt in the water! Aqua therapy here we come!
Thanks to EVERYONE for all the love, prayers, good vibes, and thoughts. We couldn’t have made it this far without each and every one!
13 Comments 
That is so exciting! We were at the Ravinia concert on Friday too--though we had no idea what a wonderful event we were celebrating!
Saturday, June 27, 2009 - 08:37 PM
Wow wow wow! Ubelievable! This is such great news, congrats to you guys and to Jake, and what a great way to celebrate! Very exciting. and aqua therapy is the best!!!
Saturday, June 27, 2009 - 09:26 PM
Rock on, Little Jake!
Saturday, June 27, 2009 - 10:34 PM
Mina
Soon he'll be swingin' from vine to vine! RIGHT ON RAMBO!
Soon he'll be swingin' from vine to vine! RIGHT ON RAMBO!
Sunday, June 28, 2009 - 08:13 AM
I am so happy for you guys. Jake is a rockstar. You guys deserve all the good vibes and payers.
cha
cha
Sunday, June 28, 2009 - 09:10 AM
I was so happy to share in the celebration at Ravinia. Jake is "da man". It was wonderful to hear his voice, even when he was crying. He had a great time being the center of attention and all. More adventures to follow, I'm sure in typical Jake style, cool as can be.
Love you all,
Judy
Love you all,
Judy
Sunday, June 28, 2009 - 11:10 AM
Way to go, Idaho!!! So, so happy for all of you.
Love,
Deb
Love,
Deb
Sunday, June 28, 2009 - 12:42 PM
He has the sweetest voice in the world. He can scream and holler as much as he wants :)
Love
Grandma
Love
Grandma
Sunday, June 28, 2009 - 08:05 PM
Wonderful news! So glad to hear all is going well
Sunday, June 28, 2009 - 09:08 PM
Well Well! I had no doubt that he wouldn't sail through taking the trach out. He really is a tough little guy. I am so happy for him and you both. His quality of life has taken a big leap forward for him and you both. Glad to hear he still his making large improvements every day.
Love
Auntie
Jo-Ann
Love
Auntie
Jo-Ann
Monday, June 29, 2009 - 11:06 AM
Hey Ladies, this is so very excited can't wait to see him -- HEAR Him -- Swim with him, fun fun fun. We are up at the beach house all week -- thinking of you all. xxxx
aunt kiki
uncle dirk and the entire ehlers brood.
aunt kiki
uncle dirk and the entire ehlers brood.
Monday, June 29, 2009 - 01:04 PM
Belated congratulations on this OUTSTANDING news!
All our best,
Julie and Kevin Peters
All our best,
Julie and Kevin Peters
Wednesday, July 1, 2009 - 02:12 PM
i am so happy for jake and you. it has been a long hard road but worth every step of the journey. my prayers and thoughts are with you all. love and hugs, mama barlo
Wednesday, July 1, 2009 - 10:22 PM
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