Today we went to see a new plastic surgeon at the UIC Crainiofacial Center. What a dream come true! The doc had no reservation about doing the jaw distraction surgery sooner rather than later. Like, hopefully, within the next month or so!!! VERY EXCITING!!!
It’s been a busy time here in the Gates-Ehlers household. Jake’s been to Shriners twice now. Once was with the cleft lip/palate group - where we found the new plastic surgeon - and once with the orthopedic hand group. The hand doc was satisfied with how Jake’s hands are coming along and had new splints made for him. The goal is to get his wrists as straight as possible so that he can make a fist. If he can make a fist, holding utensils will be much easier.
We went to the foot ortho doc on Monday and he too is pleased with the progress he sees. Jake has outgrown the first stander that was made for him so we’re getting another one. He’s also started using a walker. It’s got a sling that he sits in. Now we’re getting him used to moving his legs for mobility purposes. Also VERY exciting!
This Friday we go to get him fitted for a one-way speaking valve. It’s called a Passey-Muir valve and we’ve been trying to get him in for a while. We both truly believe that he’s dying to talk...and I have a feeling we’ll be hearing lots from him!!!
Thanks, as always, to all for the good thoughts, well wishes, and prayers...it truly does take a village!
On another note, I’ve decided to sell my motorcycle (Dr. Mary, QUIT cheering!). If you know of anyone who’d be interested in a 2006 Harley-Davidson 883L with 406 (yes, that’s four hundred and six) miles on it with an extended warranty, please let me know!
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